Parkinson’s Products and Advocacy with Maria De Leon MD, Bruce McIntyre, Emile Maamary and Sidney Collin
This episode honoring Parkinson’s Awareness Month focused on Parkinson’s products and advocacy, featuring discussions on various technologies and support systems. Emile Maamary introduced the Steadiwear glove, designed to reduce hand tremors in both Parkinson’s and essential tremor, with the Steadi-3 version* set for April 2025 delivery. Bruce McIntyre highlighted the Oklahoma Parkinson’s Alliance’s support groups, educational programs, and caregiver events. Maria De Leon MD emphasized the importance of early diagnosis and advocacy, especially for young onset and female patients. Sydney Colin discussed the NexStride device, which uses visual and auditory cues to aid gait stability, benefiting various neurological conditions. It was acknowledged by all that Carol Chiang’s Occupational Therapist perspective is very valuable in evaluating needs and solutions for Parkinson’s. The session underscored the need for accessible, affordable, and effective solutions for Parkinson’s patients.
April is Parkinson’s Awareness Month AND Occupational Therapy Month. World Parkinson’s Day 2025 is April 11th! It was noted that there was a great deal of activity on social media, particularly Instagram running up to World Parkinson’s Day including hashtag SparktheNight with over 300 landmarks lighting up in blue. ImStillAllie is an Instagram account about young onset Parkinson’s.
*Please note that prior to Steadi-3, Steadiwear products could only claim results for essential tremor. Steadi-3 has multiple improvements, including a lower cost. Currently available in a pre-order program.
Recorded on April 11, 2024, this episode is part of the Parkinson’s Series. Speakers are listed in their order of appearance.
Emile Maamary, Co-Founder and CMO, Steadiwear Inc.
Bruce McIntyre, CEO, Oklahoma Parkinson’s Alliance
Maria De Leon MD, author Parkinson’s Diva; freelance contributor multiple Parkinson’s pubs including defeatparkinsons.com
Sidney Collin, Co-Founder, CEO, CTO De Oro Devices NexStride
Carol Chiang’s How Visual and Auditory Cues Can Decrease Freezing in Parkinson’s 9-3-22 YouTube video for NexStride
Debbie Howard’s summary of this show.
Thank you to Emile Maamary and Sidney Collin for joining us 3-9-23 for a discussion on this topic with Jimmy Zollo of Joe and Bella.
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Hosted by: Linda Sherman, Debbie Howard, Steve Ewell and Carol Chiang. Further info on them is in the sidebar, fifth item with a microphone symbol.
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Music: Solemnity written and performed by Richard Sherman
